It’s the second last day of the blogging challenge I’m participating in. I’m really surprised, and proud that I’ve made it this far. Today’s challenge is to write a post that starts a discussion. I would really love it if you commented here, or over on my Facebook page.
After writing my story post on my eldest boy and Autism Spectrum Disorders (ASD), I had a couple of discussions with other people about their family’s journey with ASD, and difficulties in getting children assessed, diagnosed, and receiving support to help their child reach their full potential. My eldest was diagnosed in a different part of the country to where we live now, and the assessment processes are very different in these two different areas – or they were, I don’t know if the process has changed where we used to live.
So, if you have a child or family member with ASSD, I would love to hear about the assessment and diagnosis process for ASD where you live. This can be whether you live in Australia – I know different states and territories have different processes; or whether you live in other parts of the world.
For our family, we lived in Darwin in the Northern Territory when my eldest boy was diagnosed. Back in 2010, we only needed one paediatric developmental specialist to make a diagnosis, however, the assessment process was carried out over multiple appointments over the period of three months. When I asked our paediatric speech therapy team for advice on ASD assessment, they gave me the contact details of the the paediatric development team at out local public hospital. We saw our GP for a referral, and luckily for us, we had an appointment a month later. The assessment was carried out by a paediatric psychiatrist who asked questions about the signs I had noticed, and who also evaluated my boy’s behaviour, language, and social skills. Following his diagnosis, we were referred to a paediatrician, and to a paediatric psychologist at the local children and youth mental health team. Both the paediatrician and the psychologist confirmed the diagnosis made by the psychiatrist. So for us, from initial referral to a diagnosis being made was about four months. This allowed us to access ASD therapy services really quickly. I honestly believe that it was this access to early intervention services that has resulted in the huge gains that my boy has made.
I’ve since heard that the assessment in Darwin is a lot harder than it was when we lived there. We live in Western Australia now. From what I’ve been told by other ASD families, the assessment and diagnosis process here requires a child to be evaluated by three specialists over multiple appointments, including a paediatrician, speech pathologist, and a paediatric psychologist or psychiatrist. I’m also led to believe that waiting lists, especially through the public system, are quite long, and leads to delays in diagnosis, and in access early intervention services. On the other hand, while the private system is quicker, it comes at a huge financial cost to families.
So, what the assessment process where you live? Is there a huge out of pocket cost to have a child evaluated? And what are the waiting lists like?
I’d love to read about your experiences.